Emily’s Entourage

For the Last 10% of Cystic Fibrosis Patients, the Breakthrough Still Has Not Arrived

A major medical advance has transformed cystic fibrosis care for most patients, but a stubborn minority still cannot benefit from the new generation of drugs. Emily’s Entourage is now directing funding toward research aimed at reaching that final 10%, underscoring how scientific progress can be both dramatic and incomplete. The effort highlights a broader challenge in precision medicine: breakthroughs often leave behind the people whose genetics fall outside the treatment window.